Marine Corp Marathon for #TeamTSC
Hello friends and family! I got word recently that I am now officially registered to run in the MCM 2018 for Team TSC and I am officially asking for your help....
Tuberous Sclerosis Complex is genetic disorder characterized by the growth of numerous noncancerous (benign) tumors in many parts of the body. These tumors can occur in the skin, brain, kidneys, and other organs, in some cases leading to significant health problems. As you probably know, I have three children affected by this condition and since kicking booze in 2012, have wanted to use my running ability as a vehicle of some sort to contribute to this cause
As a part of our family’s journey with TSC and the multitudes of challenges these kids have faced, I let go of many of my old connections. The cyclone of trauma and tragedy we all experienced in managing the manifestations of this condition for years and trying to survive had taken its toll on me personally and connections have fallen by the wayside in the process. It has been so bleak at times, that all that seemed to matter, was what was relevant to survival in the immediate day. I’m happy to report that things have slowly gotten more stable, manageable and brighter, yet still, I resisted reconnecting with many past supports.
I will add this for other TSC Moms, caregivers, anyone affected by a diagnosis such as TSC. There’s already an inherent level of vulnerability felt when one has to continually ask for help seemingly daily, in finding and securing the services and supports necessary in the management of this condition. It can leave a caregiver feeling emotionally exhausted, marginalized and without a shred of interest in making any connections except with those in one’s immediate circle of supports. Financially, it can be unbearably stressful as it can be almost impossible to work outside the home, due to the sheer volume of necessary and often emergent appointments alone, not to mention medication management, IEP, and ISP planning, and meeting, etc, I could list pages. It leaves one bereft, winded, beat, shut down, cut off and isolated.
Enter Team TSC. Regardless of prior mentioned inhibitors, I have forced myself out of my comfort zone, almost daily, to reconnect with old connections, to put aside my own insecurities and vulnerabilities and push forward. Just as so many of us must, as TSC parents. I’ve started going to fun runs at a local sneaker store, I’m training with old competitors and starting to get involved in some local running groups, I must have emailed the team with whom I am working at the TS alliance shamelessly, daily often, with ideas and suggestions. I’ve peppered some of my closest friends, not to mention my partner and kids, with long-winded conversations regarding my mission and I’ve gotten my son, Jack, running daily which is a huge accomplishment for him.
I had this foreshadowing that I would be running in the Marine Corp Marathon at some point in the near future. My little brother, Col. Jason Woodworth, and his family, will be moving to DC in July and my oldest son Woody, and his wife Chelsey (both runners) also live in DC, so there’s that. Anyway, following my intuition, divine guidance or just wanting to see my family in October 2018, I emailed April Cooper, Director of Community Outreach Programs at TS Alliance, and lo and behold, we exchanged emails on the eve of the deadline for charities to apply for groups of entries in the upcoming 2018 race! However, the smallest number of spots we could apply for was 50. That meant we would have to get 50 people signed up to run for Team TSC and commit to fundraising a certain minimum dollar amount. Which I”ll tell you now, is a very reasonable $1000 bucks per entry.
So, friends, family, connections, readers far and wide, I’m here to thank you for already being a part of Team TSC because, in so many ways, you are. What I’m going to ask too, is that you spread the word about this incredible fundraiser that has the potential to blast open the doors on not only fundraising but awareness and connections around the country! That is my vision for Team TSC.
Please feel free to donate if you feel moved, and keep #TeamTSC in heart and mind as we ramp up our training over the course of the next 4 months or so to be in tip-top shape at the starting line of Marine Corp Marathon 2018 to represent just the depth and intensity of our personal connections to TSC and our drive to find a cure and raise awareness. Thank you so much!!
If you think this page contains objectionable content, please inform the system administrator.