Hello everyone!!! We are here again for the 5th year in a row asking for your support in our fight against Tuberous Sclerosis Complex. Please join us on Saturday September 20th, 2014 at Wantagh Park as we Step Forward to Cure TSC. In the years since the Long Island walk has been in existence we have helped raise over $350,000 to go toward much needed research and advocacy programs across the country. If not for this critical research being performed Alexandra would not be as healthy as she is today. We are not saying she is cured of her seizures or out of any further problems down the road but because of the medicine she takesevery day she is CONTROLLED.
That all being said Ally has still had her bumps and bruises in the past year where she was hospitalized for injuries incurred during her more frequent "DROP" seizures. Denise has gotten many of those dreaded phone calls from school to report seizures or that she got hurt. Allys MRI's and EEG's have remained unchanged which is a good thing overall.
We’re asking you to join us in the fight to find a cure! Please help support our family who have refused to give up, refused to take no for an answer, even when faced with the daily challenges of seizures, autism, anxiety, behavioral problems, and medical complications.
We’re making HUGE strides in finding a cure for TSC. Here’s what we know now that we didn’t know just two short years ago: TSC is what’s called a “linchpin” disease. The genetic pathway involved in TSC is the same pathway affecting over a dozen major diseases and disorders, including autism, epilepsy, cancer, and obesity. We’ve got a long way to go, but recent clinical trials of a new drug actually show the symptoms of autism disappearing in mice. We’re in a race against time and our resources are strained beyond their limits!
Please support our fight by joining me and helping to break the back of this horrific disorder. You can register to join us or make a donation securely by clicking the donate button on this page.
Thank you for your continued support!!!!