Chicago Walk FY19

Little D
Little D

Little D's Heroes

As many of you know, our son Derrick (a.k.a. Little D) suffers from Tuberous Sclerosis Complex (TSC). Derrick continues to amaze his medical teams with how well he’s doing but challenges remain ahead. We continue to visit specialists in Wisconsin, Illinois, and Memphis. Recent checkups and testing show no significant changes in the growths that occupy Derrick’s kidneys, spleen, eyes, and heart. His seizures remain under control and recent behavioral/development testing helped us to create a specialized plan to continue his congnitive development.

Despite all of the challenges, proper perspective has us extremely grateful for the incredible medical advances over the past 10+ years. We know that Derrick would not be with us today without them.

Now we need your help to continue this research for Derrick and many others like him.Our team is participating in the 2019 Step Forward to Cure TSC Charity Walk. We are thrilled to return to Carmel High School with the same mission...to fight for the 1 in 6,000 kids like Derrick born with TSC every day, 50,000 in the U.S., over 1 million worldwide. TSC is more common than Lou Gehrig's disease and Cystic Fibrosis. And there is no cure. Yet!

Ours is a story of determination. Our stunningly small group of parents, through sheer will and passion, has brought this disease to the brink of a breakthrough. We are joined in our fight by aunts and uncles, brothers and sisters, grandparents and friends, co-workers and colleagues. We're asking you to join us in the fight to find a cure! Please help support our family who has refused to give up, refused to take no for an answer, even when faced with the daily challenges of seizures, autism, ADHD, facial disfiguration, anxiety, behavioral problems, and medical complications.

We're making HUGE strides in finding a cure for TSC. Here's what we know now that we didn't know just a few short years ago: TSC is what's called a “linchpin” disease. The genetic pathway involved in TSC is the same pathway affecting over a dozen major diseases and disorders, including autism, epilepsy, cancer, and obesity. We've got a long way to go, but recent clinical trials of a new drug actually show the symptoms of autism disappearing in mice. We're in a race against time and our resources are strained beyond their limits!

Please support our fight by joining us and helping to break the back of this horrific disorder. You can register to join us or make a donation securely by clicking the donate button on this page.

Many, many thanks!

Scott, Renée, Sophia, and Derrick Brown

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