Welcome to My Personal Page
I am participating in the Step Forward to Cure TSC walk. I choose to fight for the 1 in 6,000 people born with TSC every day…50,000 in the U.S…over 1 million worldwide. TSC is more common than Lou Gehrig’s disease and Cystic Fibrosis. And there is no cure.
Ours is a story of determination. Our stunningly small group of parents, through sheer will and passion, have brought this disease to the brink of a breakthrough. We are joined in our fight by aunts and uncles, brothers and sisters, grandparents and friends, co-workers and colleagues. We’re asking you to join us in the fight to find a cure! Please help support our family who has refused to give up, refused to take no for an answer, even when faced with the daily challenges of seizures, autism, ADHD, facial disfiguration, anxiety, behavioral problems, and medical complications.
We're making HUGE strides in finding a cure for TSC. Here's what we know now we didn't know a few years ago: TSC is what's called a "linchpin" disease. The genetic pathway involved in TSC is the same pathway affecting more than a dozen major diseases and disorders, including autism, epilepsy, cancer, and obesity. We’ve got a long way to go, but researchers recently initiated a clinical trial to determine if we can actually prevent the development of seizures in babies born with TSC. We're in a race against time and our resources are strained beyond their limits!
Please support our fight by joining me and helping to break the back of this horrific disorder. You can register to join us or make a donation securely by clicking the donate button on this page.
Many, many thanks!
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