Welcome to My Personal Page
Thank you for visiting my personal Forward to Cure TSC walk fundraising page. I hope you’ll support my fight for the 1 in 6,000 people born with tuberous sclerosis complex (TSC) every day…50,000 in the U.S…more than 1 million worldwide. Children and adults with TSC live each day under unimaginable circumstances yet they and their caregivers carry on with incredible courage and tenacity. Thankfully, current TSC collaborative research and groundbreaking science show significant promise of greatly improved quality of life for those affected by TSC in the near future.
Together the TS Alliance and the TSC community tell a story of determination. A stunningly small group of parents, through sheer will and passion, have brought this disease to the brink of a breakthrough. We are joined in our fight by aunts and uncles, brothers and sisters, grandparents and friends, co-workers and colleagues. We’re asking you to join us in the fight to find a cure! Please help support our family who has refused to give up, refused to take no for an answer, even when faced with the daily challenges of seizures, autism, ADHD, facial disfiguration, anxiety, behavioral problems, and other medical complications.
When the Tuberous Sclerosis Alliance (TS Alliance) was formed by four mothers in 1974, the future for anyone affected by TSC was somewhat bleak, but the vision of our founders never wavered—they hoped, one day, to fund research into how the disease occurs, identify better treatments and hopefully find a cure. Since then, we’ve identified the two genes that cause TSC, how those genes impact the systems of the body and how the disease manifests itself. As a result, new treatments and new drugs specific to TSC have been approved to shrink brain and kidney tumors and to treat epilepsy. Moreover, a clinical trial recently launched to determine if we can prevent seizures from ever developing in newborns with TSC. But so much more needs to be done for families and individuals who have lived with TSC for decades, watched their loved ones deteriorate and still desperately need answers.
Please support our fight by joining me and helping to break the back of this horrific disorder. You can register to join us or make a donation securely by clicking the donate button on this page.
Many, many thanks!
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