Welcome to Team M&Ms Page!
Hi friends and family!
Martin, Manuel, myself and Brien have had many obstacles since we found out (very happily) we were pregnant. There were so many bumps along the way, it was the scariest yet most exciting time of our lives. We’ve always kept our trust and faith in God that HE is taking care of our boys and HE always will, no matter what.
With that being said, Martin and Manuel were diagnosed prenatally with TSC (Tuberous Sclerosis Complex.) In summary, this condition causes multiple benign tubers to grow on their vital organs. We have been to countless doctors appointments throughout Northern California to make sure our boys are getting the best monitoring possible. Let me tell you-these boys are TOUGH! They have been poked, prodded, given test after test to, and just messed with in general SO many times and always surprise their doctors with how well they behave. They are both doing very well! This is a life-long condition with no true “quick-fix.” They will be monitored their entire lives. We have cried, been angry and upset, and asked “why” and “why us” hundreds of times. There is no answer and no right way to feel. Now, we are asking for support and to find a cure for this condition!
We are participating in the Northern California Step Forward to Cure TSC Walk on October 27th 2018 from 10 AM-1 PM in San Leandro. If anyone is interested in supporting our two brave little boys, Team M&M, in walking with us or donating (or both!) please follow the link provided and/or message me with any questions! ANYTHING helps!! We are working on getting T-Shirts made as well, more details to come on those soon!! Please let me know if you are interested in that!
I also want to add that if ANYBODY, even if I have not talked to you in years, needs someone to talk to...about anything...I AM HERE!! We have been through A LOT since last October (much more than I am posting) and I want to extend a listening ear to anyone who might need that! I might not understand your situation, but I’ve been through so many medical scares within this past year that I could offer some possible words of advice or just like I said, a listening ear!!
Lastly but most importantly, I want to share a little bit about my faith in God in all of this. If it were not for him, I truly know I myself could not have gotten through all of this. I still of course have better days than others, I am scared like any parent is with this condition or any other medical condition! BUT, with HIM watching over and taking care of these boys and knowing for a fact that HE’S got this..I can sleep at night. I TRUST that this is somehow part of his plan, and Brien and I are praying together with our family, our sweet little M&Ms, to fight through this and come out stronger together! Any and all support along the way is appreciated, ESPECIALLY prayers! The power of prayer is SO real. I cannot put into words how real it is!!
...anddddd if you have read this far you are AMAZING! From myself, Brien and mostly Martin and Manuel, thank you from the bottom of our hearts for opening up yours!! If anyone has any questions about this condition or anything related please feel free to ask!
I am participating in the Step Forward to Cure TSC walk. I choose to fight for the 1 in 6,000 people born with TSC every day…50,000 in the U.S…over 1 million worldwide. TSC is more common than Lou Gehrig’s disease and Cystic Fibrosis. And there is no cure.
Ours is a story of determination. Our stunningly small group of parents, through sheer will and passion, have brought this disease to the brink of a breakthrough. We are joined in our fight by aunts and uncles, brothers and sisters, grandparents and friends, co-workers and colleagues. We’re asking you to join us in the fight to find a cure! Please help support our family who has refused to give up, refused to take no for an answer, even when faced with the daily challenges of seizures, autism, ADHD, facial disfiguration, anxiety, behavioral problems, and medical complications.
We're making HUGE strides in finding a cure for TSC. Here's what we know now we didn't know a few years ago: TSC is what's called a "linchpin" disease. The genetic pathway involved in TSC is the same pathway affecting more than a dozen major diseases and disorders, including autism, epilepsy, cancer, and obesity. We’ve got a long way to go, but researchers recently initiated a clinical trial to determine if we can actually prevent the development of seizures in babies born with TSC. We're in a race against time and our resources are strained beyond their limits!
Please support our fight by joining me and helping to break the back of this horrific disorder. You can register to join us or make a donation securely by clicking the donate button on this page.
Many, many thanks!
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