Help Support Team Cam Bam!
Meghan and I recently learned our sweet angel Cameran was diagnosed with Tuberous Sclerosis Complex. TSC is a “rare” genetic disorder that leads to a wide range of challenges potentially including seizures, autism, ADHD, facial disfiguration, anxiety, behavioral problems, and various other medical complications including benign growths in the brain and other vital organs. One in 6,000 kids are born every day with TSC and it impacts between one and two million people worldwide. It’s more common than Lou Gehrig’s disease and Cystic Fibrosis. And there is no cure…yet.
The period following Cameran’s initial seizures, going from the neurologist, to one hospital, being sent in an ambulance in the middle of the night to Mass General, and dealing with the shock of the diagnosis was a horrifying experience. Following various doctor appointments though the shock began to lessen and we started to focus on what we can do to tackle this terrible disease. We’re very fortunate to have the medical resources available to us being in Boston, but we also learned of the TS Alliance. This wonderful group not only raises funds and awareness in the fight against TSC, but also provides a tremendous support system for all those being impacted.
To assist in the TS Alliance’s efforts, I am thrilled to be participating in Keys to the Cure and running as part of their 2018 Marine Corp Marathon team. The genetic pathway involved in TSC is the same pathway affecting over a dozen major diseases and disorders, including autism, epilepsy, cancer, and obesity. That said the TS Alliance is making HUUUGE strides in finding a cure for TSC. New available medicine and recent clinical trials are promising, but resources are limited. This disease is on a brink of a breakthrough and we’re asking you to join us in the fight to find a cure!
Please support our fight and help break the back of this horrific disorder by making a donation to my fundraising efforts by clicking the Donate Now button at the top of the page. Better yet you can register to join Team TSC and we can crush the MCM together while raising funds for a great cause by going to the below link!
Any support will be appreciated by the TS Alliance, Meghan, myself, and our precious Cam Bam!
Join me on Team TSC by going to: https://www.tsalliance.org/news/run-marine-corps-marathon-team-tsc/
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