Running for Revi - Kiran Thomas
My son, Revi Blyth Thomas, was diagnosed with TSC when he was 3.5 months old. Since that diagnosis, we have been in and out of the hospital over 10 times. Through it all, Revi like all kids with TSC, has been a warrior.
Last year, my wife, Sarah Blyth, ran in the NYC Marathon for Team TSC. Revi and I, along with several members of our extended family, were fortunate enough to make the trip to watch her run an amazing race. I was inspired by my wife's preperation and determination throughout the entire process. This year, it's my turn to represent the Running for Revi team.
As part of Team TSC, I am excited to participate in the Keys to the Cure. I choose to fight for Revi and the 1 in 6,000 kids born with TSC every day…50,000 in the U.S…over 1 million worldwide. TSC is more common than Lou Gehrig’s disease and Cystic Fibrosis. And there is no cure. Yet!
Ours is a story of determination. Our stunningly small group of parents, through sheer will and passion, have brought this disease to the brink of a breakthrough. We are joined in our fight by aunts and uncles, brothers and sisters, grandparents and friends, co-workers and colleagues. We’re asking you to join us in the fight to find a cure! Please help support our family who have refused to give up, refused to take no for an answer, even when faced with the daily challenges of seizures, autism, ADHD, facial disfiguration, anxiety, behavioral problems, and medical complications.
Please support our fight by joining me and helping to support research in undestanding TSC. You can register to join us or make a donation securely by clicking the donate button on this page.
Kiran, Sarah and Revi
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